Search Results for “mobility” – Page 3

Rare Disease Day

SMA & Related Disorders | “Mighty Max” Sych “Max was diagnosed with SMA Type 2 during the pandemic. We have had to learn to be patient with each other when navigating this new way of life. We have spent hours on Zoom calls with physiotherapists, occupational therapists, and kinesiologists in order to get Max moving. … Continue reading Rare Disease Day

Grant Descriptions

A Virtual Transition Intervention for Children and Adults Transitioning To Home Ventilation in Ontario: A Pragmatic Randomized Controlled Trial Lead Investigator: Dr. Reshma Amin MD | Hospital for Sick Children, ONCollaborators: Dr. Louise Rose, Dr. Andrea Sara Gershon, Mrs. Francine Buchanan, Mrs. Regina Pizzuti, et al. Funding Period: 2019/2020 to 2022/2023Competition: Team Grant: Transitions in … Continue reading Grant Descriptions

Virtual/Tele-Physiotherapy During COVID-19

Virtual/Tele-Physiotherapy During COVID-19 Learning Objectives Learn about virtual/tele-physiotherapy and understand whether it can be effective. Learn about the importance of continuing physical therapy/rehabilitation and the need to transition to virtual rehabilitation during COVID-19. Learn about available rehabilitation resources and home-based exercise techniques that are relevant for people with neuromuscular disorders. Learn about practical easy-to-use virtual-physiotherapy … Continue reading Virtual/Tele-Physiotherapy During COVID-19

Translational Science and Clinical Research Grants

Muscular Dystrophy Canada (MDC) is the single largest funder of neuromuscular research in Canada. Through our research funding, we are committed to advancing research that will ultimately lead to cures for neuromuscular disorders. MDC‘s annual Neuromuscular Disorder Research Grant Program invests in clinical and translational research projects related to the diagnosis, treatment, or clinical care … Continue reading Translational Science and Clinical Research Grants

Educational Resources

Muscular Dystrophy Canada provides accessible information and educational support to the neuromuscular community across the country. We offer opportunities to build a community of support through presentations like Muscle Facts, conferences, network meetings, educational sessions, and community activities like the Walk for Muscular Dystrophy. We raise awareness of neuromuscular disorders, provide information on best practices … Continue reading Educational Resources

Equipment Program

Muscular Dystrophy Canada’s Equipment Program has assisted thousands of Canadians to access the equipment needed to enhance their quality of life. By working with other funders and the government, we share resources to best leverage donor dollars to cover the costs of assistive devices, equipment and accessible technology. At the same time, Muscular Dystrophy Canada … Continue reading Equipment Program

CADTH REVIEW AND SPINRAZA

Spinraza decision signals the need for a Canadian Rare Disease (or Orphan Drug) Framework The drug review and approval process in Canada is complex. Many agencies from Health Canada, to Canadian Agency for Drugs and Technologies in Health (CADTH) and Institut national d’excellence en santé et en services sociaux (INESSS), to the Pan-Canadian Pharmaceutical Alliance … Continue reading CADTH REVIEW AND SPINRAZA

Frequently Asked Questions

X Are you a registered MDC client? If not, register today to access our programs and services! Did you know healthcare professionals, researchers, friends, family members and people with neuromuscular disorders can all register as MDC clients? REGISTER NOW Who can be impacted by neuromuscular disorders? Anyone. Neuromuscular disorders can impact anyone at any age. … Continue reading Frequently Asked Questions