Wheelchairs are often provided to people with Autosomal recessive spastic ataxia of Charlevoix-Saguenay (ARSACS) and myotonic dystrophy type 1 (DM1) when they are not able to walk anymore. However, giving someone a wheelchair alone does not guarantee they will use it safely or properly. Many people who use wheelchairs need help from others to get … Continue reading Efficacy of wheelchair skills training to improve mobility for people with ARSACS and DM1
Search Results for: mobility
THANKS TO YOU, ALEX HAS GAINED GREATER MOBILITY!
“I’m happy to report, as of a couple weeks ago, we picked up the keys to our wheelchair accessible van! We’re very much looking forward to making use of the warm weather to have some adventures with our newfound mobility!” “We both really appreciate your assistance and thank you again.” – Alex Carey, BC
A better trunk and lower limb control for a better mobility: Assessment of a re-entrainment program in Autosomal recessive spastic ataxia of Charlevoix-Saguenay
Autosomal recessive spastic ataxia of Charlevoix-Saguenay (ARSACS) is a hereditary neurological disorder presenting with pyramidal (i.e. lower limbs spasticity), cerebellar (i.e. incoordination) and neuropathic (i.e. distal muscle weakness) impairments. Our previous research studies have shown that people with ARSACS have major impairments in regard to upper and lower limbs coordination, upper limbs dexterity, walking speed/endurance … Continue reading A better trunk and lower limb control for a better mobility: Assessment of a re-entrainment program in Autosomal recessive spastic ataxia of Charlevoix-Saguenay
Moving Research & Discovery Forward – The 2024 Neuromuscular Clinical and Translational Research Grant Recipients
Muscular Dystrophy Canada (MDC) is pleased to announce the recipients of its annual Neuromuscular Research Grants competition. Through these grants, MDC is investing $900,000 into clinical and translational research projects focused on managing healthcare, understanding diagnosis and disease progression, enhancing care, discovering novel treatments and therapies and moving research towards the development of cures. This … Continue reading Moving Research & Discovery Forward – The 2024 Neuromuscular Clinical and Translational Research Grant Recipients
Governments across Canada urged to close current gap in care for debilitating neuromuscular disease by funding treatment advancements
Toronto, Ontario – Access to innovative care is vital for Canadians living with myasthenia gravis (MG) to help relieve the considerable impact faced by those affected by this rare neuromuscular disorder. For the first time in over 30 years, treatment advancements for adults with refractory MG have been approved in Canada, bringing hope to those for … Continue reading Governments across Canada urged to close current gap in care for debilitating neuromuscular disease by funding treatment advancements
Mark got what he needed to get back outside and explore nature!
“My son is a 14 year old boy with DMD who was diagnosed when he was just one and half. Despite the physical limitations, Mark loves nature and outdoor time. But, we have to closely monitor the steps he takes so that he is not overexerting himself which will result in muscle cramps or even … Continue reading Mark got what he needed to get back outside and explore nature!
Abilities (at the) Centre of new location for Walk and Roll for Muscular Dystrophy Canada
FOR IMMEDIATE RELEASE June 16, 2023 Toronto, Ontario – The 2023 Walk and Roll for Muscular Dystrophy Canada (MDC) has changed venues from a local park to the Abilities Centre in Whitby in an effort to ensure the event is as accessible as possible for all participants. It takes place on June 25, 2023. “MDC … Continue reading Abilities (at the) Centre of new location for Walk and Roll for Muscular Dystrophy Canada
Muscular Dystrophy Canada, AccessNow teaming up to make travel more accessible for people with disabilities
Toronto, Ontario – Traveling can be a very stressful event for people using mobility devices and can negatively impact their independence and safety. Far too often, we know critical mobility devices are being damaged in transit impacting a person’s mobility. Muscular Dystrophy Canada (MDC) and AccessNow are partnering to equip travellers with the information they … Continue reading Muscular Dystrophy Canada, AccessNow teaming up to make travel more accessible for people with disabilities
Accessible Travel
Traveling can be a very stressful event for people using mobility devices and can negatively impact their independence and safety. Far too often, we know critical mobility devices are being damaged in transit impacting a person’s mobility. Muscular Dystrophy Canada (MDC) and AccessNow are partnering to equip travelers with the information they need to plan … Continue reading Accessible Travel
Limb-Girdle Muscular Dystrophy
You call it Limb-Girdle… We call it a neuromuscular disorder. MEET CHRISTINA Christina was twelve years old when she started to experience weakness in her legs. She struggled to get up off the floor and just climbing stairs became very hard. Sometimes, her legs would give out entirely. As an active and energetic youth who … Continue reading Limb-Girdle Muscular Dystrophy