• MDC AND PARTNERS LAUNCH CENTRAL HUB FOR NMD SPECIALISTS – A CANADIAN FIRST!

    MDC AND PARTNERS LAUNCH CENTRAL HUB FOR NMD SPECIALISTS – A CANADIAN FIRST!

    Have you ever looked for a healthcare professional who specializes in the specific neuromuscular disorder (NMD) affecting you or a loved one? If your response is ‘yes’, you share a common experience with many Canadians who frequently seek healthcare professionals experienced in their specific condition. In fact, the second most frequently asked question to MDC’s …Continue Reading
  • TOGETHER, WE’RE HELPING BREAK DOWN BARRIERS FOR CHILDREN WITH NMDS

    TOGETHER, WE’RE HELPING BREAK DOWN BARRIERS FOR CHILDREN WITH NMDS

    During a time when being understood, included and involved is critical, classroom environments can be a daunting place for anyone affected by a neuromuscular disorder (NMD). Did you know Muscular Dystrophy Canada (MDC) offers tools to help educate a wide range of audiences on specific NMDs? These activities are tailored to open the conversation around …Continue Reading
  • WE HEARD YOU: BREAKING DOWN THE BARRIERS OUR COMMUNITY EXPERIENCE MOST

    WE HEARD YOU: BREAKING DOWN THE BARRIERS OUR COMMUNITY EXPERIENCE MOST

    At the 32 Walk & Roll events that took place across the country last year, we surveyed participants to learn more about the barriers persons affected by NMDs face every day. From this feedback, it was clear our community encounter many challenges when it comes to receiving an accurate and timely diagnosis, accessing equipment and …Continue Reading
  • YOU ARE BUILDING THE FUTURE OF RESEARCH AND CARE

    YOU ARE BUILDING THE FUTURE OF RESEARCH AND CARE

    MDC together with the Neuromuscular Disease Network for Canada (NMD4C) are thrilled to announce the recipients of the National Clinical and Post-doctoral Fellowships competition. These fellowships are made possible by YOU. They are funded by generous donors and incredible partners like Fire Fighters across the country. Congratulations to Dr Yassine Ouhaddi, Dr Cedric Happi-Mbakam, Dr …Continue Reading
  • FIRE FIGHTERS IGNITE JOY AND MAKE LASTING CONNECTIONS

    FIRE FIGHTERS IGNITE JOY AND MAKE LASTING CONNECTIONS

    Fire Fighters go above and beyond in more ways than we can count! For almost seven decades, dedicated and passionate Fire Fighters across Canada have been supporting the neuromuscular community in a variety of ways. They raise important funds through boot drives, rooftop campouts, stair climbs and other activities. But, did you know they also …Continue Reading
  • CELEBRATING VOLUNTEERS AS THEY CHAMPION CHANGE ACROSS CANADA

    CELEBRATING VOLUNTEERS AS THEY CHAMPION CHANGE ACROSS CANADA

    MDC is incredibly thankful to have volunteers who demonstrate extraordinary commitment to raising funds, increasing awareness and advocating for the NMD community, and supporting continued research. Volunteers give so much, in so many ways, it’s hard to express how appreciative we are for their dedication. One way MDC shows our gratitude and celebrates the contributions …Continue Reading
  • MYASTHENIA GRAVIS JOURNEY MAPPING: AN INSIDE LOOK

    MYASTHENIA GRAVIS JOURNEY MAPPING: AN INSIDE LOOK

    In 2023, Muscular Dystrophy Canada (MDC) conducted a journey mapping initiative for Canadians with myasthenia gravis (MG), a rare autoimmune neuromuscular condition. While some treatments are available for MG in Canada, there remains many challenges and unmet needs. We recognized these recurring roadblocks and difficulties in the diagnosis process for our MG clients, and wanted …Continue Reading
  • LET’S FIND YOUR PATHWAY OF POSSIBILITIES

    LET’S FIND YOUR PATHWAY OF POSSIBILITIES

    Regardless of the NMD, MDC is here to help! The image below illustrates where along your journey MDC's services will be able to support, guide and inform you and your families.Continue Reading
  • Mark got what he needed to get back outside and explore nature!

    Mark got what he needed to get back outside and explore nature!

    “My son is a 14 year old boy with DMD who was diagnosed when he was just one and half. Despite the physical limitations, Mark loves nature and outdoor time. But, we have to closely monitor the steps he takes so that he is not overexerting himself which will result in muscle cramps or even …Continue Reading
  • Community Statement: Update on Deflazacort®/Calcort® Availability

    Community Statement: Update on Deflazacort®/Calcort® Availability

    We want to bring your attention to recent developments surrounding the availability of Deflazacort®/Calcort®, a corticosteroid vital to many Canadians affected by Duchenne muscular dystrophy. Up until 2023, Deflazacort was accessible at a relatively low cost in Canada through Health Canada’s Special Access Program despite intermittent supply shortages. In February, due to a change in …Continue Reading