Category: Advocacy

Support someone like Elude today

For years, Elude complained of pain in his legs that would not go away and after several doctor’s visits, he was diagnosed with oculopharyngeal muscular dystrophy. As his disease progressed, it became increasingly difficult for Elude to complete everyday tasks and his wife, Gaétane stepped in to support.

For more than 30 years, Gaétane has struggled to take care of everything on her own including completing daily chores, caring for Elude and maintaining their home in New Brunswick. Then eight years ago, Elude’s condition deteriorated. Thankfully, one of their nurses told them about Muscular Dystrophy Canada (MDC).

“We asked for help to purchase equipment including a machine that helps to clear Elude’s throat, and mobility devices like a walker and a chair lift,” Gaétane said. Having access to these devices greatly improves Elude’s mobility, giving him greater enjoyment and quality of life.

MDC also supports caregivers, like Gaétane, who receives a few hours of domestic help each week, giving her a much needed break to recharge. Those few hours ensure she is her best self when at home with her husband.

Your gift today will enable MDC to continue delivering life-changing programs that help families, like Elude and Gaétane, enjoy greater independence and an improved quality of life from the comfort of their own home.

MAKE YOUR GIFT TODAY

Your generosity today means that MDC clients can count on us for supportive programs and services, while we continue to fund research and champion advocacy efforts on their behalf.

Because of you, we can partner with families in your community who need it most.

The gift you make today will change lives.

DONATE NOW

Make a life-changing difference for someone like Lucas

At eight years old, Lucas was diagnosed with centronuclear myopathy (MTM1), which causes severe muscle and lung weakness and greatly affects his mobility. Because of his disorder, Lucas uses a wheelchair, and relies heavily on his family, especially his mom and dad, Sarah and Arnaud, for support with daily activities including personal care and going up and down stairs.

As Lucas got older, and his disorder progressed, it became more difficult for Sarah to lift him to the bathroom or carry him upstairs to his bedroom. Left with the difficult task of modifying their home in Quebec to meet Lucas’ needs, they registered with Muscular Dystrophy Canada (MDC), who stepped in to support these much-needed renovations.

With support from MDC, Sarah and Arnaud equipped their home with an elevating platform and a power lift, providing Lucas with improved mobility and quality of life.

Through MDC’s life-changing programs, Lucas can now move around his home freely without needing to rely on his family as much. This equipment lets Lucas be more independent and gives his family a break from the physical demands of caring for him.

Your gift today will enable MDC to continue delivering life-changing programs that help families like Lucas, Sarah and Arnaud, enjoy greater independence, and improved quality of life.

MAKE YOUR GIFT TODAY

Your generosity today means that MDC clients can count on us for supportive programs and services, while we continue to fund research and champion advocacy efforts on their behalf.

Because of you, we can partner with families in your community who need it most.

The gift you make today will change lives.

DONATE NOW

Canadians like Johnny need your support now

When Johnny began experiencing weakness and muscle deterioration, he brushed it off as a sign of aging. As an athlete, who enjoyed running and golfed regularly, being diagnosed with Limb-Girdle muscular dystrophy in his late 40’s was life changing for him and his wife, Carla.

At first, Johnny’s biggest issue was climbing stairs, until his disorder had progressed to the point where he not only couldn’t climb stairs anymore but, also had great difficulty standing up and sitting down. Left with the difficult task of modifying their home in British Columbia to meet Johnny’s needs, they registered with Muscular Dystrophy Canada (MDC).

With support from MDC, Carla and Johnny were able to equip their home with several ramps. MDC also provided Johnny with leg braces, which Carla says, “he wears all the time! The leg braces provide him with a lot of support and enable him to do things that he otherwise wouldn’t be able to do.”

Carla and Johnny feel grateful for the support of MDC. Carla says, “all interactions that Johnny has with Sharon [MDC’s Service Specialist in British Columbia] are so kind and supportive. She listens to him, and is so caring. It’s like they’re friends. There is no cure for muscular dystrophy and although we have wonderful doctors, there is no other support for us, other than MDC!”

Your gift today will enable MDC to continue delivering life-changing programs that help families like Johnny and Carla, enjoy greater independence, and improved quality of life.

MAKE YOUR GIFT TODAY

Your generosity today means that MDC clients can count on us for supportive programs and services, while we continue to fund research and champion advocacy efforts on their behalf.

Because of you, we can partner with families in your community who need it most.

The gift you make today will change lives.

DONATE NOW

B.C. newborn screening expands; early detection improves quality of life

Muscular Dystrophy Canada is overjoyed that babies born in British Columbia will now be screened for spinal muscular atrophy (SMA). Congratulations to the Government of B.C. on taking this important step that will lead to early diagnosis and treatments that will have life-changing results for individuals and families. Access to the earliest diagnosis will ensure that patients have access to the right treatment and healthcare at the right time, resulting in the best health outcomes for patients.

Celebrating the heart and soul of the Canadian neuromuscular disorder community

At Muscular Dystrophy Canada (MDC) we value the incredible community across the country who champion our mission with courage, determination, and passion. Through the Dr. David Green Awards program, we recognize and celebrate these incredible groups and individuals each year.

We are excited to announce the list of our esteemed 2022 award winners. These individuals show extraordinary commitment to raising funds, increasing awareness and advocating for the neuromuscular disorder (NMD) community, supporting continued research, engaging other community members and building positive connections.

“MDC is extremely fortunate to have such incredible individuals and groups committed to supporting our mission and the Canadian NMD community,” says Stacey Lintern, CEO, Muscular Dystrophy Canada. “Volunteers are the backbone of our organization. They fundraise, share creative ideas, give their time, contribute their experiences and help to advance advocacy efforts, research and programs and services. Thank you doesn’t even begin to cover just how appreciative we are for each and every one of this year’s recipients.”

2022 Dr. David Green Award recipients

CADTH makes final recommendation on adult access to treatment

Muscular Dystrophy Canada (MDC) is deeply disappointed with CADTH’s final recommendation against reimbursement and access to potentially life-changing treatment for adults affected by spinal muscular atrophy.

“It is extremely challenging for patients not to have access to treatments in Canada when real-world evidence shows a treatment can be beneficial,” said Stacey Lintern, CEO, Muscular Dystrophy Canada. “While this is not the news we were hoping for, MDC is as committed as ever to breaking down barriers for all Canadians affected by neuromuscular disorders,” “We will continue to advocate and work with government and other like-minded organizations, to influence policy and processes so the neuromuscular community has access to treatments and can make informed decisions concerning treatment options.”

Global Alliance for Myotonic Dystrophy

To raise awareness about myotonic dystrophy and improve the quality of life of people living with the disorder, over 50 myotonic dystrophy-focused organizations from around the world have united to celebrate Myotonic Dystrophy Families Day on July 23, and International Myotonic Dystrophy Awareness Day on September 15.

In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, this year the focus will also be on raising awareness and education among clinical care teams, and clinical trial readiness for participants.

“Muscular Dystrophy Canada is honoured to work with organizations in the Global Alliance for Myotonic Dystrophy Awareness Initiative. Together we can make a difference,” said Stacey Lintern, CEO, Muscular Dystrophy Canada.

Read the press release

TEN DOWN, THREE TO GO

Manitoba and Quebec latest provinces to embark on newborn screening for SMA

It’s been one year since we started working on making newborn screening (NBS) for spinal muscular atrophy (SMA) a reality for all Canadian babies. Thanks to a partnership with Novartis Canada and your unwavering support – there are only two provinces and a territory left to commit to this life-changing test. This spring, Quebec started planning for newborn screening for SMA, and Manitoba announced it moved from the planning phase to officially screening all babies.

Learn more “TEN DOWN, THREE TO GO”

Quebec announces policy on rare diseases

Muscular Dystrophy Canada applauds the Quebec government for leading the way towards a rare disease strategy for Canadians by announcing its own rare disease policy.

The Minister of Health and Social Services, Christian Dubé, announced the establishment of the first Quebec policy for rare diseases on June 6, 2022. The policy aims to optimize the accessibility of quality health care and services that are safe, fair, inclusive and adapted to the specific needs of patients with rare diseases and their families.

“This is a great step forward for the rare disease community, and will perhaps motivate other provinces to do the same,” said Stacey Lintern, CEO, Muscular Dystrophy Canada. “Having our provinces prioritizing and working on rare disease policies, and collaborating with each other is the next big step towards developing a national rare disease strategy.”

Read the full release
(French only)

All Canadians deserve access to life-changing treatments

While therapies exist for spinal muscular atrophy (SMA), many of them are out of reach for adults. Recently, a CTV article featuring Nouma Hammash highlighted the disparity that exists depending on your age, and where you live in Canada.

“For instance, in Quebec and Saskatchewan MDC clients, like Nouma, have access to life-changing drugs. In other provinces and territories that is not the case. Muscular Dystrophy Canada (MDC) urges the government to give all adults access to these treatments because of the incredible outcomes that are possible,” said Stacey Lintern, CEO, Muscular Dystrophy Canada.

At a roundtable discussion, attended by twelve individuals affected by spinal muscular atrophy, from across the country, MDC heard that geographic location, age, lack of qualitative data and a piece-meal approach by governments all prevent Canadian adults from accessing treatments that could radically improve their quality of life.

“In a neuromuscular disorder like SMA, access to treatments are critical to achieving the best possible outcomes. For Canadians affected, it can mean the difference in how quickly a condition progresses and as a result, the way they walk, feed themselves and for some even breathe,” said Homira Osman, VP, Research and Public Policy, Muscular Dystrophy Canada.

If you would like to learn more about treatments and how to access them, please contact the Research Hotline at: research@muscle.ca.

You can also find information about access to treatments and submissions to government here: muscle.ca/services-support/advocacy/access-to-treatments