NMD4C propelling research forward for patients, scientists and clinicians

The goals of the new NMD4C network are to:

• Build and sustain a new network of neuromuscular disorders stakeholders to make it easier for Canadian researchers, clinicians and patient advocates to improve research and care.
• Train and educate the next generation of neuromuscular disorder-specific clinicians, scientists, and patient advocates to improve the quality of care and research.
• Raise the standard of care for neuromuscular disorders and access to therapies across Canada, by developing and providing the right information, to the right audience, at the right time.
• Expand access to research resources and build research capacity by uniting local efforts across Canada and linking to international activities.

“This is such an exciting time in the neuromuscular space. There are so many new treatments and trials coming to Canada, and we want to ensure a coordinated approach with the medical community on behalf of the thousands of clients and families we support,” added MDC CEO, Barbara Stead-Coyle.

“The Canadian Institutes of Health Research is committed to improving the health of Canadians and partnerships between patients, charities such as Muscular Dystrophy Canada, industry partners and investigators. Kudos to Muscular Dystrophy Canada for decades of providing wonderful service for Canadians,” said Dr. Karim Khan, Scientific Director, CIHR Institute of Musculoskeletal Health and Arthritis.

In addition to helping fund this three-year grant, MDC will be an equal partner to the NMD4C network and serve as the knowledge translation lead. MDC will be responsible for the coordination and management of knowledge translation activities.

The goal is to raise the standard of care for neuromuscular disorders by developing, disseminating, and implementing clinical care guidelines tailored to different audiences; using a variety of methods to share knowledge with individuals impacted by neuromuscular disorders, clinicians, and researchers about network activities, clinical trial opportunities, and educational and training events.

In line with our goal of increasing the understanding and awareness for neuromuscular disorders, MDC is very happy to be organizing its first-ever nation-wide Neuromuscular Conference set for November 7-8, 2020 at the Sheraton Centre in Toronto. Registration and full website will open in the spring.

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You can visit the Neuromuscular Network at neuromuscularnetwork.ca