We firmly believe that the best way to find a cure for neuromuscular disorders is through collaboration, innovative research, and a rigorous adherence to scientific principles. We offer different programs and funding opportunities to support research.
We currently offer research funding through:
Grants
| Year | Principle Recipient | Affilliation, Principle Recipient | Total Amount of Grant | Length of Funding (years) | Name of Project |
|---|---|---|---|---|---|
| 2014 | Dr. Craig Campbell | London Health Sciences Centre | $49,920.00 | 1 | Understanding Decision Needs for Respiratory interventions in Pediatric Neuromuscular Disorders: Laying the Foundation for Developing a Shared Decision Environment for Respiratory Care Decisions |
| 2014 | Dr. Judy King | Ottawa Hospital | $47,303.00 | 1 | A respiratory-focused e-learning resource for people living with neuromuscular disease and their families |
| 2014 | Dr. Louise Rose | Sunnybrook Research Institute | $49,690.00 | 1 | Health Service Utilization for Assessment, Monitoring and Management of Respiratory Complications for Individuals with Neuromuscular Disease |
| 2014 | Dr. Michael Seear | University of British Columbia | $17,025.00 | 1 | Comparison of three methods for improving expiratory cough flow and lung volume in children with neuromuscular disease |
| 2015 | Dr. Hans Katzberg | University Healt Network/University of Toronto | $42,500.00 | 1 | Clinical Determinants of Nocturnal Hypoventilation in Patients with Adult and Pediatric Myasthenis Gravis |
| 2015 | Dr. Marta Kaminska | McGill University | $49,879.00 | 1 | Validation of home portable monitoring for diagnosis of sleep disordered breathing in adolescents and adults with neuromuscular disorders |
| 2015 | Dr. Louise Rose | Sunnybrook Research Institute | $49,505.00 | 1 | Translating Recommendations for Airway Clearance from the Canadian Thoracic Society Home Mechanical Ventilation |
| 2015 | Dr. Reshma Amin | The Hospital for Sick Children | $49,183.00 | 1 | Assessing Air Travel Safety in Duchenne Muscular Dystrophy: Standard versus Prolonged High Altitude Simulation Tests |
| 2016 | Dr. Amy McPherson | Bloorview Research Institute | $49,696.00 | 1 | Promoting healthy weights to support respiratory function in children with Duchenne muscular dystrophy |
| 2016 | Dr. Louise Rose | Sunnybrook Research Institute | $49,998.00 | 1 | Development & Pilot Evaluation of an Online Peer Support Program for Family Caregivers of Ventilator-Assisted Individuals with Neuromuscular Disease Living in the Community |
| 2016 | Dr. Sherri Katz | Children’s Hospital of Eastern Ontario | $49,998.00 | 1 | Understanding the Acceptability of Lung Volume Recruitment Among Boys with Duchenne Muscular Dystrophy: A Mixed- Methods Sub-study of the STEADFAST Trial |
| 2017 | Dr. Reshma Amin | The Hospital for Sick Children | $49,855.06 | 1 | The Diagnostic Accuracy and Reliability of Transcutaneous Carbon Dioxide Monitoring at Home for Nocturnal Hypoventilation Screening in Children with Neuromuscular Disease |
| 2017 | Dr. Cynthia Gagnon | École de réadaptation CIUSSS du Saguenay—Lac-St-Jean | $50,000.00 | 1 | Development of a Questionnaire to Assess the Severity of Dysphagia in Neuromuscular Disorders: a pilot study |
| 2017 | Dr. Unni Narayanan | The Hospital for Sick Children | $45,241.65 | 1 | Validation of the Muscular Dystrophy Child Health Index of Life with Disabilities (MDCHILD) Questionnaire in children with other chronic neuromuscular conditions |
| 2017 | Dr. Danielle Peers | University of Alberta | $50,000.00 | 1 | Moving to Breathe, Breathing to Move: An interdisciplinary study on the benefits of choral and dance exercise for people with neuromuscular conditions |
| 2017 | Dr. Ellen Roche | Massachusetts Institute of Technology | $50,000.00 | 1 | Development of a Soft Robotic Diaphragmatic Assist Device for Diaphragm Dysfunction in Muscular Dystrophy |
| 2017 | Dr. Jodi Warman Chardon | The Ottawa Hospital | $45,050.00 | 1 | Diagnostic Utility of Muscle MR Imaging in Genetic Myopathies |
| 2018 | Dr. Ari Breiner | Ottawa Hospital | $49,851.00 | 1 | A Population-based Cohort Study of Pregnancy Outcomes in Women with Myasthenia Gravis |
| 2018 | Dr. Cynthia Gagnon | École de réadaptation CIUSSS du Saguenay—Lac-St-Jean | $40,639.65 | 1 | A better trunk and lower limb control for a better mobility: Assessment of a re-entrainment program in Autosomal recessive spastic ataxia of Charlevoix-Saguenay |
| 2018 | Dr. Cynthia Gagnon | École de réadaptation CIUSSS du Saguenay—Lac-St-Jean | $46,706.00 | 1 | Quand attendre est synonyme de meilleurs services : Création d’une salle d’attente interactive pour informer les personnes atteintes de maladies neuromusculaires des enjeux de la recherche |
| 2018 | Dr. Gerald Pfeffer | University of Calgary | $47,837.98 | 1 | Interventional Study of Expiratory Muscle Strength Training as a Treatment for Muscle Disease” |
| 2018 | Dr. Leanne M. Ward | Children’s Hospital of Eastern Ontario | $49,596.00 | 1 | Denosumab for the Treatment of Osteoporosis in Boys with Duchenne Muscular Dystrophy: A Pilot Study |
| 2018 | Laura Oldford, Lise Bleau | Stan Cassidy Centre for Rehabilitation (New Brunswick) | $25,000.00 | 1 | Robotics |
Partnerships
| Year | Grant program | Principle Recipient | Affilliation, Principle Recipient | Name of Project |
|---|---|---|---|---|
| 200803JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Jane Andrea E Batt | University of Toronto | Nedd4 Regulation of Skeletal Muscle Atrophy and Regeneration |
| 200803JNM | CIHR Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Bernard Brais | Centre hospitalier de l’Université de Montréal (CHUM) | Developing molecular, cellular and mice models for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) |
| 200803JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Jean-Marc E Renaud | University of Ottawa/Université d’Ottawa | Mutation of the mouse nav1.4 muscle sodium channel: understanding hyperkalemic periodic paralysis (hyperkpp) |
| 200803JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Janice Robertson | University of Toronto | The TAR-DNA-binding protein-43 and amyotrophic lateral sclerosis |
| 200903JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Guy A Rouleau | Centre hospitalier de l’Université de Montréal (CHUM) | Mutation of KCC3: Understanding a sensory motor neuropathy |
| 200903JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Charles Krieger | Simon Fraser University (Burnaby, B.C.) | Bone Marrow-Derived Cells as Gene Delivery Vehicles in Amyotrophic Lateral Sclerosis (ALS) |
| 200903JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Janice Robertson | University of Toronto | Peripherin Abnormalities in Amyotrophic Lateral Sclerosis |
| 200903JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Blair R Leavitt | Centre for Molecular Medicine & Therapeutics (BC) | Determination of muscle properties that alter ALS onset and disease progression using the G93A mouse model of ALS |
| 201003JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Jean-Pierre Julien | Université Laval | Pathogenic mechanisms associated with neurofilament disorganization |
| 201003JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Kelvin E Jones | University of Alberta | Promoting protection of functionally intact motor units in amyotrophic lateral sclerosis (ALS). |
| 201003JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Jean Mathieu | Hôpital de Jonquière (Québec) | Motor, multisystemic and social participation assessment in myotonic dystrophy type 1: a 9-year longitudinal study. |
| 201003JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Victor F Rafuse | Dalhousie University (Nova Scotia) | Developing specific motoneuron subtypes from embryonic stem cells, and induced pluripotent stem cells, to treat neuromuscular disorders and paralysis due to injury. |
| 201103JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Robin N Michel | Concordia University (Montreal, Quebec)/Université Concordia | Role of calcineurin and its signaling modulators in the dystrophic phenotype |
| 201103JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Alexander E Mackenzie | Children’s Hospital of Eastern Ontario Research Institute Inc/Institut recherche Centre hospitalier pour enfants de l’est de l’Ontario | Preclinical assessment of clinic ready agents for the treatment of muscular dystrophy and spinal muscular atrophy |
| 201103JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Douglas A Monks | University of Toronto | Mouse models of Kennedy Disease/Spinobulbar Muscular Atrophy |
| 201203JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Anthony O Gramolini | University of Toronto | Molecular basis of ryanodine receptor regulation and function in skeletal and cardiac muscle |
| 201203JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Jérôme Frenette | Université Laval | Rank/Rankl/OPG: a new pathway that regulates skeletal muscle disuse, aging and disease |
| 201203JNM | Operating Grant – Priority Announcement: Neuromuscular Research | Dr. Robin N Michel | Concordia University (Montreal, Quebec)/Université Concordia | Identifying novel roles of calcineurin signaling in the control of multiple complementary pathways affecting the dystrophic phenotype |
| 201305ERA | Operating Grant – E-Rare-2 Joint Transnational Call on Rare Diseases | Dr. F J Dilworth | Ottawa Hospital Research Institute/Institut de recherche de l’Hôpital d’Ottawa | An international effort to understand FSHD muscular dystrophy epigenetics |
| 201305ERA | Operating Grant – E-Rare-2 Joint Transnational Call on Rare Diseases | Dr. Michael A Rudnicki | Ottawa Hospital Research Institute/Institut de recherche de l’Hôpital d’Ottawa | Stimulating Intrinsic Repair for DMD (SIRD) |
| 2014 | Network catalyst grant | Can-NMD | National | |
| 201506ERT | Team Grant: Transnational Research Projects on Rare Diseases | Brais, Bernard | Montreal Neurological Institute/Institut neurologique de Montréal | PREPARE: Preparing for therapies in autosomal recessive ataxias |
| 201706ERT | Team Grant: Transnational Research Projects on Rare Diseases | Dowling, James | The Hospital for Sick Children | Novel therapies for neuromuscular diseases with altered phosphoinositide metabolism |
| 2018 | Jesse Journey Partnership | Dr. Anthony Gramolini | University of Toronto | Non-viral, immune-modulatory nanoparticles for delivery of CRISPR/Cas9 as a treatment intervention for Duchenne Muscular Dystrophy. |
| 2018 | Jesse Journey Partnership | Dr. Michael A. Rudnicki | Ottawa Hospital Research Institute | Exosomal Delivery of Wnt7a for treating Duchenne Muscular Dystrophy. |
| 2018 | 2018-2019 EJP-Rare Diseases (CIHR) | TBA |