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A Family's Journey

Our mission:

To enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support & resources while relentlessly searching for a cure through well funded research.

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Blog

  • Dec
    03
    2016
    INTERNATIONAL DAY OF PERSONS WITH DISABILITIES: Lana on Goal #9

    We asked our friend and colleague Lana Miley to speak to one of the Sustainable Development Goals and tell us what it means to her as someone who lives with a disability. Lana chose goal number nine: Industry, innovation and infrastructure. Here’s what she had to say about it

  • Nov
    30
    2016
    CDA Consultations: National Youth Forum

    The next day we were shuttled to Carleton University for the Forum, along with approximately 150 other delegates and their support staff. After hearing the opening remarks from Minister Carla Qualtrough and others, we were divided into smaller groups for a series of breakout sessions.

  • Nov
    18
    2016
    Rock on for a cure!

    The boys have found unique ways to fundraise including hosting an annual Valentines’ Day Fundraising party with their grandparents, creating and selling rainbow loom bracelets, preparing and selling sold baked goods at a garage sale and more.

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