We firmly believe that the best way to find a cure for neuromuscular disorders is through collaboration, innovative research, and a rigorous adherence to scientific principles. We offer different programs and funding opportunities to support research.

We currently offer research funding through:

Year Principle Recipient Affilliation, Principle Recipient Total Amount of Grant Length of Funding (years) Name of Project
2014 Dr. Craig Campbell London Health Sciences Centre $49,920.00 1 Understanding Decision Needs for Respiratory interventions in Pediatric Neuromuscular Disorders: Laying the Foundation for Developing a Shared Decision Environment for Respiratory Care Decisions
2014 Dr. Judy King Ottawa Hospital $47,303.00 1 A respiratory-focused e-learning resource for people living with neuromuscular disease and their families
2014 Dr. Louise Rose Sunnybrook Research Institute $49,690.00 1 Health Service Utilization for Assessment, Monitoring and Management of Respiratory Complications for Individuals with Neuromuscular Disease
2014 Dr. Michael Seear University of British Columbia $17,025.00 1 Comparison of three methods for improving expiratory cough flow and lung volume in children with neuromuscular disease
2015 Dr. Hans Katzberg University Healt Network/University of Toronto $42,500.00 1 Clinical Determinants of Nocturnal Hypoventilation in Patients with Adult and Pediatric Myasthenis Gravis
2015 Dr. Marta Kaminska McGill University $49,879.00 1 Validation of home portable monitoring for diagnosis of sleep disordered breathing in adolescents and adults with neuromuscular disorders
2015 Dr. Louise Rose Sunnybrook Research Institute $49,505.00 1 Translating Recommendations for Airway Clearance from the Canadian Thoracic Society Home Mechanical Ventilation
2015 Dr. Reshma Amin The Hospital for Sick Children $49,183.00 1 Assessing Air Travel Safety in Duchenne Muscular Dystrophy: Standard versus Prolonged High Altitude Simulation Tests
2016 Dr. Amy McPherson Bloorview Research Institute $49,696.00 1 Promoting healthy weights to support respiratory function in children with Duchenne muscular dystrophy
2016 Dr. Louise Rose Sunnybrook Research Institute $49,998.00 1 Development & Pilot Evaluation of an Online Peer Support Program for Family Caregivers of Ventilator-Assisted Individuals with Neuromuscular Disease Living in the Community
2016 Dr. Sherri Katz Children’s Hospital of Eastern Ontario $49,998.00 1 Understanding the Acceptability of Lung Volume Recruitment Among Boys with Duchenne Muscular Dystrophy: A Mixed- Methods Sub-study of the STEADFAST Trial
2017 Dr. Reshma Amin The Hospital for Sick Children $49,855.06 1 The Diagnostic Accuracy and Reliability of Transcutaneous Carbon Dioxide Monitoring at Home for Nocturnal Hypoventilation Screening in Children with Neuromuscular Disease
2017 Dr. Cynthia Gagnon École de réadaptation CIUSSS du Saguenay—Lac-St-Jean $50,000.00 1 Development of a Questionnaire to Assess the Severity of Dysphagia in Neuromuscular Disorders: a pilot study
2017 Dr. Unni Narayanan The Hospital for Sick Children $45,241.65 1 Validation of the Muscular Dystrophy Child Health Index of Life with Disabilities (MDCHILD) Questionnaire in children with other chronic neuromuscular conditions
2017 Dr. Danielle Peers University of Alberta $50,000.00 1 Moving to Breathe, Breathing to Move: An interdisciplinary study on the benefits of choral and dance exercise for people with neuromuscular conditions
2017 Dr. Ellen Roche Massachusetts Institute of Technology $50,000.00 1 Development of a Soft Robotic Diaphragmatic Assist Device for Diaphragm Dysfunction in Muscular Dystrophy
2017 Dr. Jodi Warman Chardon The Ottawa Hospital $45,050.00 1 Diagnostic Utility of Muscle MR Imaging in Genetic Myopathies
2018 Dr. Ari Breiner Ottawa Hospital $49,851.00 1 A Population-based Cohort Study of Pregnancy Outcomes in Women with Myasthenia Gravis
2018 Dr. Cynthia Gagnon École de réadaptation CIUSSS du Saguenay—Lac-St-Jean $40,639.65 1 A better trunk and lower limb control for a better mobility: Assessment of a re-entrainment program in Autosomal recessive spastic ataxia of Charlevoix-Saguenay
2018 Dr. Cynthia Gagnon École de réadaptation CIUSSS du Saguenay—Lac-St-Jean $46,706.00 1 Quand attendre est synonyme de meilleurs services : Création d’une salle d’attente interactive pour informer les personnes atteintes de maladies neuromusculaires des enjeux de la recherche
2018 Dr. Gerald Pfeffer University of Calgary $47,837.98 1 Interventional Study of Expiratory Muscle Strength Training as a Treatment for Muscle Disease”
2018 Dr. Leanne M. Ward Children’s Hospital of Eastern Ontario $49,596.00 1 Denosumab for the Treatment of Osteoporosis in Boys with Duchenne Muscular Dystrophy: A Pilot Study
2018 Laura Oldford, Lise Bleau Stan Cassidy Centre for Rehabilitation (New Brunswick) $25,000.00 1 Robotics
Year Grant program Principle Recipient Affilliation, Principle Recipient Name of Project
200803JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Jane Andrea E Batt University of Toronto Nedd4 Regulation of Skeletal Muscle Atrophy and Regeneration
200803JNM CIHR Operating Grant – Priority Announcement: Neuromuscular Research Dr. Bernard Brais Centre hospitalier de l’Université de Montréal (CHUM) Developing molecular, cellular and mice models for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)
200803JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Jean-Marc E Renaud University of Ottawa/Université d’Ottawa Mutation of the mouse nav1.4 muscle sodium channel: understanding hyperkalemic periodic paralysis (hyperkpp)
200803JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Janice Robertson University of Toronto The TAR-DNA-binding protein-43 and amyotrophic lateral sclerosis
200903JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Guy A Rouleau Centre hospitalier de l’Université de Montréal (CHUM) Mutation of KCC3: Understanding a sensory motor neuropathy
200903JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Charles Krieger Simon Fraser University (Burnaby, B.C.) Bone Marrow-Derived Cells as Gene Delivery Vehicles in Amyotrophic Lateral Sclerosis (ALS)
200903JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr.  Janice Robertson University of Toronto Peripherin Abnormalities in Amyotrophic Lateral Sclerosis
200903JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Blair R Leavitt Centre for Molecular Medicine & Therapeutics (BC) Determination of muscle properties that alter ALS onset and disease progression using the G93A mouse model of ALS
201003JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Jean-Pierre Julien Université Laval Pathogenic mechanisms associated with neurofilament disorganization
201003JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Kelvin E Jones University of Alberta Promoting protection of functionally intact motor units in amyotrophic lateral sclerosis (ALS).
201003JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Jean Mathieu Hôpital de Jonquière (Québec) Motor, multisystemic and social participation assessment in myotonic dystrophy type 1: a 9-year longitudinal study.
201003JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Victor F Rafuse Dalhousie University (Nova Scotia) Developing specific motoneuron subtypes from embryonic stem cells, and induced pluripotent stem cells, to treat neuromuscular disorders and paralysis due to injury.
201103JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Robin N Michel Concordia University (Montreal, Quebec)/Université Concordia Role of calcineurin and its signaling modulators in the dystrophic phenotype
201103JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Alexander E Mackenzie Children’s Hospital of Eastern Ontario Research Institute Inc/Institut recherche Centre hospitalier pour enfants de l’est de l’Ontario Preclinical assessment of clinic ready agents for the treatment of muscular dystrophy and spinal muscular atrophy
201103JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Douglas A Monks University of Toronto Mouse models of Kennedy Disease/Spinobulbar Muscular Atrophy
201203JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Anthony O Gramolini University of Toronto Molecular basis of ryanodine receptor regulation and function in skeletal and cardiac muscle
201203JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr.  Jérôme Frenette Université Laval Rank/Rankl/OPG: a new pathway that regulates skeletal muscle disuse, aging and disease
201203JNM Operating Grant – Priority Announcement: Neuromuscular Research Dr. Robin N Michel Concordia University (Montreal, Quebec)/Université Concordia Identifying novel roles of calcineurin signaling in the control of multiple complementary pathways affecting the dystrophic phenotype
201305ERA Operating Grant – E-Rare-2 Joint Transnational Call on Rare Diseases Dr. F J Dilworth Ottawa Hospital Research Institute/Institut de recherche de l’Hôpital d’Ottawa An international effort to understand FSHD muscular dystrophy epigenetics
201305ERA Operating Grant – E-Rare-2 Joint Transnational Call on Rare Diseases Dr. Michael A Rudnicki Ottawa Hospital Research Institute/Institut de recherche de l’Hôpital d’Ottawa Stimulating Intrinsic Repair for DMD (SIRD)
2014 Network catalyst grant Can-NMD National  
201506ERT Team Grant: Transnational Research Projects on Rare Diseases Brais, Bernard Montreal Neurological Institute/Institut neurologique de Montréal PREPARE: Preparing for therapies in autosomal recessive ataxias
201706ERT Team Grant: Transnational Research Projects on Rare Diseases Dowling, James The Hospital for Sick Children Novel therapies for neuromuscular diseases with altered phosphoinositide metabolism
2018 Jesse Journey Partnership Dr. Anthony Gramolini University of Toronto Non-viral, immune-modulatory nanoparticles for delivery of CRISPR/Cas9 as a treatment intervention for Duchenne Muscular Dystrophy.
2018 Jesse Journey Partnership Dr. Michael A. Rudnicki Ottawa Hospital Research Institute Exosomal Delivery of Wnt7a for treating Duchenne Muscular Dystrophy.
2018 2018-2019 EJP-Rare Diseases (CIHR) TBA