100 percent of Canada is now screening infants for spinal muscular atrophy, a potentially fatal disorder
Muscular Dystrophy Canada and partners deliver on goal outlined in Canada’s Rare Disease Strategy Toronto, Ontario, Canada, August 20, 2024 – Muscular Dystrophy Canada is thrilled to announce that after three years of working with each Canadian province and territory, all babies born in Canada can now be tested for spinal muscular atrophy (SMA). This …Continue ReadingYOU’RE MOVING RESEARCH FORWARD
Muscular Dystrophy Canada is the only dedicated source of funding for neuromuscular research in Canada. Because of donors, volunteers, Fire Fighters and incredible supporters, like you, we invested $900,000 into nine clinical and translational research projects through the Neuromuscular Research Grants Competition this year. Thanks to your generosity, we also invested $63,630 towards an innovative …Continue ReadingYOU ARE BUILDING THE FUTURE OF RESEARCH AND CARE
MDC together with the Neuromuscular Disease Network for Canada (NMD4C) are thrilled to announce the recipients of the National Clinical and Post-doctoral Fellowships competition. These fellowships are made possible by YOU. They are funded by generous donors and incredible partners like Fire Fighters across the country. Congratulations to Dr Yassine Ouhaddi, Dr Cedric Happi-Mbakam, Dr …Continue ReadingMoving Research & Discovery Forward – The 2024 Neuromuscular Clinical and Translational Research Grant Recipients
Muscular Dystrophy Canada (MDC) is pleased to announce the recipients of its annual Neuromuscular Research Grants competition. Through these grants, MDC is investing $900,000 into clinical and translational research projects focused on managing healthcare, understanding diagnosis and disease progression, enhancing care, discovering novel treatments and therapies and moving research towards the development of cures. This …Continue ReadingDonors make it possible to invest in both neuromuscular disorder research and care, now and for the future
FOR IMMEDIATE RELEASE – Muscular Dystrophy Canada (MDC) together with the Neuromuscular Disease Network for Canada (NMD4C) are thrilled to announce the recipients of the National Clinical and Post-doctoral Fellowships funding competition. This competition involves an extensive review by leading Canadian neuromuscular researchers and clinicians to ensure the top-ranked candidates are selected for this funding opportunity. “Too …Continue ReadingRESEARCH TRAINING IS AVAILABLE FOR YOU!
Did you know you could guide research and maximize its findings? It’s true! When you become a patient research partner you will inform research findings and make a difference for the NMD community! Many incredible NMD community members have generously participated in research initiatives as participants. But now, you can be part of the team …Continue ReadingNeuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care
Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care For Immediate Release: June 21, 2023 Toronto, ON – The Neuromuscular Disease Network for Canada (NMD4C) has received a network grant from the Canadian Institutes of Health Research – Institute of Musculoskeletal Health and …Continue ReadingGETTING A CLOSER LOOK AT THE SOCIAL AND ECONOMIC COSTS OF NEUROMUSCULAR DISORDERS
Muscular Dystrophy Canada is proud of our significant contributions to understanding the costs related to living with a neuromuscular disorder (NMD) in Canada. In fact, thanks to your support, we led the first study to examine the societal cost in Canada for six common types of neuromuscular disorders: Duchenne muscular dystrophy, spinal muscular atrophy, myotonic …Continue ReadingRAISING THE BAR FOR NEUROMUSCULAR DISORDER RESEARCH AND CLINICAL CARE IN CANADA
Thanks to Muscular Dystrophy Canada’s (MDC) incredible supporters, when opportunities arise to improve the care, research and treatment of neuromuscular disorders (NMD) for Canadians, we’re able to act. Such was the case with the Neuromuscular Disease Network for Canada (NMD4C). Launched in January 2020, with funding from MDC and the Canadian Institutes of Health Research …Continue ReadingFUNDING FOR INNOVATIVE THERAPIES FOR HEREDITARY ATAXIAS
For immediate release Montréal, April 28, 2023 – It is with great enthusiasm that Génome Québec, Ataxia Canada and Muscular Dystrophy Canada announce the launch of the Innovative Therapies for Hereditary Ataxias competition to encourage the discovery and development of new therapies and to mobilize the research ecosystem. The three organizations aim to jointly invest $1M …Continue Reading
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