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Muscular Dystrophy Canada

Ignited by Passion, Fueled by Hope

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Advocacy News


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  • Celebrating the outstanding contributions of our volunteers through the Dr David Green Awards

    Celebrating the outstanding contributions of our volunteers through the Dr David Green Awards

    April 28, 2025
    At Muscular Dystrophy Canada we value the incredible community across the country who champion our mission with courage, determination, and passion. Through the Dr David Green Awards program, we recognize and celebrate these incredible groups and individuals each year. We are excited to announce the esteemed 2025 Dr David Green Award winners. In the past …Continue Reading
  • Muscular Dystrophy Canada Welcomes Danielle Campo McLeod as National Ambassador

    Muscular Dystrophy Canada Welcomes Danielle Campo McLeod as National Ambassador

    March 28, 2025
    March 17, 2025 – Toronto, ON – Muscular Dystrophy Canada is proud to announce the appointment of Danielle Campo McLeod as our new National Ambassador. This inaugural role is a key component of Muscular Dystrophy Canada’s strategy to expand our reach, elevate brand awareness, and increase engagement with new and existing stakeholders across Canada. Reporting …Continue Reading
  • BREAKING DOWN BARRIERS: ADVANCING ACCESS TO EARLY DIAGNOSIS, TREATMENTS, AND ESSENTIAL EQUIPMENT THROUGH ADVOCACY

    BREAKING DOWN BARRIERS: ADVANCING ACCESS TO EARLY DIAGNOSIS, TREATMENTS, AND ESSENTIAL EQUIPMENT THROUGH ADVOCACY

    March 28, 2025
    For many Canadians with neuromuscular disorders, the journey to diagnosis is long and frustrating, marked by uncertainty, misdiagnoses, and delays. Myotonic Dystrophy Type 1 affects not only mobility but also the heart, cognition, and the gastrointestinal system, yet many individuals spend years searching for answers before finally accessing genetic testing. These delays result in missed …Continue Reading
  • COMMUNITY MEMBERS MAKE A DIFFERENCE IN WAYS THAT MATTER MOST TO THEM

    COMMUNITY MEMBERS MAKE A DIFFERENCE IN WAYS THAT MATTER MOST TO THEM

    March 28, 2025
    Every year, individuals and groups across the country raise money to support Muscular Dystrophy Canada in their own way by hosting their own special events, including everything from bake sales to bike rides, golf tournaments, dances, auctions, and head-shaving challenges. Each year our community has fun while giving back in all sorts of ways! Community …Continue Reading
  • Policies Lag Behind Progress for Canadians affected by Neuromuscular Disorders, Putting Individuals and their Caregivers at Great Risk

    Policies Lag Behind Progress for Canadians affected by Neuromuscular Disorders, Putting Individuals and their Caregivers at Great Risk

    February 26, 2025
    In recent years, Canadians living with a neuromuscular disorder have experienced a remarkable shift in their life trajectories. Advances in disease-modifying treatments and improvements in care standards in addition to expertise shared by people with lived experiences, have turned what were once dire diagnoses into opportunities for extended, fuller lives. Diseases like spinal muscular atrophy …Continue Reading
  • What a year!

    What a year!

    February 18, 2025
    As we look back on 2024, I am so proud of what we accomplished. From coast to coast, we learned and affected change together. We continue to break through barriers and challenge ourselves at every turn. With our clients and their families at the heart of everything we do, we are excited and optimistic for …Continue Reading
  • 100% of Canada is now screening infants for spinal muscular atrophy (SMA)

    100% of Canada is now screening infants for spinal muscular atrophy (SMA)

    December 11, 2024
    Muscular Dystrophy Canada is thrilled to announce that after three years of working with each Canadian province and territory, all babies born in Canada can now be tested for spinal muscular atrophy (SMA). This milestone means infants diagnosed with SMA, the most fatal genetic disorder in children under two years of age, can receive life-changing …Continue Reading
  • Help families, like Danielle’s, get the answers and support they so desperately need.

    Help families, like Danielle’s, get the answers and support they so desperately need.

    October 31, 2024
    Danielle has defied all odds throughout her life. As a world-record holding Paralympian, Danielle challenged herself to win a medal, and not only did she win one, but over the course of two Olympic games, she won seven. Danielle is a published book author and engages many as a motivational speaker at events nationwide. She’s …Continue Reading
  • UNWAVERING COMMITMENT: FIRE FIGHTERS AND MUSCULAR DYSTROPHY CANADA CELEBRATE 70TH ANNIVERSARY

    UNWAVERING COMMITMENT: FIRE FIGHTERS AND MUSCULAR DYSTROPHY CANADA CELEBRATE 70TH ANNIVERSARY

    July 18, 2024
    Through boot drives and tolls on local roads, community barbeques, rooftop campouts, car washes, stair climbs and raffles – you name it – more than 600 fire departments, locals and associations across our country work with Muscular Dystrophy Canada every year so they can give all neuromuscular disorders “the boot” in this lifetime. Fire Fighters …Continue Reading
  • LET’S PARTNER TO ACHIEVE EVEN MORE! TOGETHER, WE HAVE ACCOMPLISHED SO MUCH AND WE KNOW THERE IS MORE TO DO

    LET’S PARTNER TO ACHIEVE EVEN MORE! TOGETHER, WE HAVE ACCOMPLISHED SO MUCH AND WE KNOW THERE IS MORE TO DO

    July 18, 2024
    At Muscular Dystrophy Canada we understand that every community is diverse in its needs and priorities. Help shape your community’s priorities, set goals, and create important action plans that we can achieve together. We’re inviting people affected by neuromuscular disorders, family members, caregivers, Fire Fighters, donors, healthcare professionals, researchers, and supporters to tell us what …Continue Reading

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