NMD4C: An integrated research network for patients, scientists, and clinicians to improve outcomes and access to therapies for patients with neuromuscular disorders in Canada

2020

Dr. Hanns Lochmuller
The Children’s Hospital of Eastern Ontario, Ottawa, Ontario

Lead investigator

Dr. Hanns Lochmuller

Dr. Hanns Lochmuller
The Children’s Hospital of Eastern Ontario
Ottawa, Ontario

Collaborators & Co-Investigators

  • Dr. James Dowling
  • Dr. Jodi Warman Chardon
  • Dr. Rashmi Kothary
  • Ms. Stacey Lintern
  • Dr. Bernard Brais
  • Dr. Craig Campbell
  • Dr. Cynthia Gagnon
  • Dr. Daria Wojtal
  • Dr. Homira Osman
  • Dr. Hugh McMillan
  • Dr. Kathryn Selby
  • Dr. Lawrence Korngut
  • Dr. Maryam Oskoui
  • Dr. Reshma Amin
  • Ms. Nicola Worsfold
  • Ms. Teresa Buffone
  • Dr. Aaron Izenberg
  • Ms. Bonnie Wooten
  • Dr. Hernan Gonorazky
  • Dr. Jason Karamchandani
  • Mr. Joshua Lounsberry
  • Ms. Kim Amburgey
  • Ms. Patricia Mortenson
  • Mr. Perry Esler
  • Ms. Rhiannon Hicks
  • Ms. Rochelle ten Haaf
  • Dr. Valérie Gagné-Ouellet
  • Dr. Victoria Hodgkinson

Research Sites & Affiliations

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Funding partners: CIHR – Inst of Musculoskeletal Health and Arthritis

Budget: $1,200,000

Disorders: All Neuromuscular Disorders

Research Areas: Amplify Research & Accelerate Knowledge

Abstract: 

The Neuromuscular Disease Network for Canada (NMD4C) is the new pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

The goals of the new NMD4C network are to:

  • Build and sustain a new network of neuromuscular disorders stakeholders to make it easier for Canadian researchers, clinicians and patient advocates to improve research and care.
  • Train and educate the next generation of neuromuscular disorder-specific clinicians, scientists, and patient advocates to improve the quality of care and research.
  • Raise the standard of care for neuromuscular disorders and access to therapies across Canada, by developing and providing the right information, to the right audience, at the right time.
  • Expand access to research resources and build research capacity by uniting local efforts across Canada and linking to international activities.
Further Information:

About the Neuromuscular Disease Network for Canada
NMD4C propelling research forward for patients, scientists and clinicians


Impact: