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LATEST EDITION
Winter 2024
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100% of Canada is now screening infants for spinal muscular atrophy (SMA)
Muscular Dystrophy Canada is thrilled to announce that after three years of working with each Canadian province and territory, all babies born in Canada can now be tested for spinal muscular atrophy (SMA). This milestone means infants diagnosed with SMA, the most fatal genetic disorder in children under two years of age, can receive life-changing …READ MOREThe 2024 Walk & Roll for Muscular Dystrophy Canada was a huge success thanks to you!
The Walk & Roll for Muscular Dystrophy Canada 2024 season is officially over, and it was a huge success, raising more than $1,089,000! Through 30 in-person events, we hosted more than 2,200 registered participants who joined us for fun-filled days, that helped break down the barriers faced by our neuromuscular community. These special community events …READ MOREDonor support makes a difference
When Sally and Cy Elston were approached by their longtime friend, Lloyd Lawrence, about supporting Muscular Dystrophy Canada, they rose to the challenge. Initially supporting a Dragon Boat Race fundraiser in Barrie, Ontario, their support has evolved over many years. Now, Sally has continued the tradition they began together through her generous gifts to Muscular …READ MOREMuscular Dystrophy Canada’s Annual Report is now available
2023-2024 marked another year of Muscular Dystrophy Canada “Breaking Down Barriers” for the Canadian neuromuscular community. If you would like to review Muscular Dystrophy Canada’s 2023-2024 Annual Report, please visit here. Lise Poulin, Board Member and Stacey Lintern, CEO share highlights from Muscular Dystrophy Canada’s 2023–2024 Annual Report.READ MOREClinical Trials in Canada for Neuromuscular Disorders Are on the Rise
In recent years, the number of clinical trials available in Canada for individuals with neuromuscular disorders has increased significantly, with opportunities doubling or even tripling in some cases. This is exciting news for people affected by neuromuscular disorders and their families as more trials mean greater access to emerging treatments, innovative research, and, potentially, life-changing …READ MOREOpening Doors: Navigating University with Neuromuscular Conditions
Choosing the right university or college is always a big decision, filled with considerations about programs, campus life, and future goals. But for students living with neuromuscular conditions, the decision becomes even more complex, as accessibility and support services are crucial to their academic success and well-being. The problem? There isn’t a centralized place where …READ MORE