This year, Rare Disease Day falls on the rarest day of the year, February 29. Canadians with rare disorders, like neuromuscular disorders, face many challenges in their healthcare journey due to limited public understanding, delayed or misdiagnoses, and insufficient resources and services.
Every Thursday leading up to Rare Disease Day, MDC is hosting advocacy training sessions and YOU are invited!
Throughout the series, participants will gain insights on how to advocate in the neuromuscular disorder community, crafting their own compelling narratives, navigating the public sector effectively, and other strategies to enhance the impact of their advocacy efforts.
Register today:
- February 1 – Power and Purpose of Advocacy
- February 8 – Crafting Your Story to Influence Change
- February 15 – Elevate and Activate Your Advocacy Journey
- February 22 – Pathways to Access: Decoding the Drug Approval Process in Canada
If you have any questions regarding your advocacy or these sessions, please reach out to research@muscle.ca.