Share and connect
The neuromuscular community is at the heart of everything we do. We’ll work with you to amplify your voice, bringing your lived experience forward to break down barriers and open up new opportunities.
Inform our work
Nobody understands the needs of the neuromuscular community better than those who are personally affected. If you’re interested in sharing your personal experience with a neuromuscular disorder to help shape our work, we offer regular opportunities to do just that.
We call it a neuromuscular disorder (NMD)
The neuromuscular community is diverse, due to the hundreds of NMDs that exist and people’s varying experiences with each. Hear from six people in our community who are facing the future with resilience and strength.
"I really can't express my gratitude enough to everyone who helps to make Muscular Dystrophy Canada the helpful, caring, and meaningful organization it is today and has always been."
Bruce Wood
Wildwood, AB
Diagnosed with CMT
Share your story
Your voice has power. By sharing your personal experience with a neuromuscular disorder—whether you live with one, care for someone who does, or support the community in another way—you help others feel seen, understood, and less alone.
Your story can inspire action, raise awareness, and drive meaningful change. It can help others facing similar challenges, inform public understanding, and guide the work we do at Muscular Dystrophy Canada. Whether through written reflections, photos, or video, we’ll work with you to tell your story in a way that feels authentic to you.
We'd love to hear from you
