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Saturday, June 1, 2019 Deloitte Tower


Muscular Dystrophy Canada's mission is to enhance the lives of those affected with muscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well-funded research.

Hello, my name is Valérie Baril and I am the mother of Justin Baril, an 11-year-old boy suffering from Duchenne muscular dystrophy.

In October 2011, the diagnosis fell into my life like a bomb. I had already heard of this disease and my heart split two when I knew that my son had it! My head was filled with words like degenerative disease, incurable disease, rare disease ... wheelchair, adapted house, and of course, the word death!

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Today, 7 years later, the disease has unfortunately progressed. Justin has a wheelchair that he no longer uses. He can no longer do so much physical activity (we often have to adapt them). Climbing steps, getting in or out of a car takes a lot of effort for our Justin. Justin has had to suffer many losses of all kinds since he was 3 years old. His motor skills, strength, stamina, and flexibility are diminishing. For Justin and us, his family, there are easier periods, and others more difficult. Our life revolves around the hospital, the rehabilitation center and the various meetings we have to adapt or modify things to help Justin.

Speaking of help: Muscular Dystrophy Canada, what a great organization that has helped us many times! We had support for sensitivity training at Justin's school, equipment loans such as a scooter to allow Justin to travel over greater distances. Finally, Muscular Dystrophy Canada keeps alive the hope of families! The High Rise Challenge, AN OUTSTANDING EVENT TO RAISE FUNDS FOR MUSCULAR DYSTROPHY RESEARCH – surrounded by firefighters, paramedics and the general public; a FESTIVE HAPPENING THAT GIVES US THE STRENGTH TO CONTINUE SMILING AND TO HAVE HOPE! The Muscular Dystrophy Canada team is so generous that a meeting and a match has been organized with the Montreal firefighters.

Thanks to Muscular Dystrophy Canada and their great team. Unity is strength!

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