• Donors make it possible to invest in both neuromuscular disorder research and care, now and for the future

    Donors make it possible to invest in both neuromuscular disorder research and care, now and for the future

    FOR IMMEDIATE RELEASE – Muscular Dystrophy Canada (MDC) together with the Neuromuscular Disease Network for Canada (NMD4C) are thrilled to announce the recipients of the National Clinical and Post-doctoral Fellowships funding competition. This competition involves an extensive review by leading Canadian neuromuscular researchers and clinicians to ensure the top-ranked candidates are selected for this funding opportunity. “Too …Continue Reading
  • RESEARCH TRAINING IS AVAILABLE FOR YOU!

    RESEARCH TRAINING IS AVAILABLE FOR YOU!

    Did you know you could guide research and maximize its findings? It’s true! When you become a patient research partner you will inform research findings and make a difference for the NMD community! Many incredible NMD community members have generously participated in research initiatives as participants. But now, you can be part of the team …Continue Reading
  • Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care

    Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care

    Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care For Immediate Release: June 21, 2023 Toronto, ON – The Neuromuscular Disease Network for Canada (NMD4C) has received a network grant from the Canadian Institutes of Health Research – Institute of Musculoskeletal Health and …Continue Reading
  • GETTING A CLOSER LOOK AT THE SOCIAL AND ECONOMIC COSTS OF NEUROMUSCULAR DISORDERS

    GETTING A CLOSER LOOK AT THE SOCIAL AND ECONOMIC COSTS OF NEUROMUSCULAR DISORDERS

    Muscular Dystrophy Canada is proud of our significant contributions to understanding the costs related to living with a neuromuscular disorder (NMD) in Canada. In fact, thanks to your support, we led the first study to examine the societal cost in Canada for six common types of neuromuscular disorders: Duchenne muscular dystrophy, spinal muscular atrophy, myotonic …Continue Reading
  • RAISING THE BAR FOR NEUROMUSCULAR DISORDER RESEARCH AND CLINICAL CARE IN CANADA

    RAISING THE BAR FOR NEUROMUSCULAR DISORDER RESEARCH AND CLINICAL CARE IN CANADA

    Thanks to Muscular Dystrophy Canada’s (MDC) incredible supporters, when opportunities arise to improve the care, research and treatment of neuromuscular disorders (NMD) for Canadians, we’re able to act. Such was the case with the Neuromuscular Disease Network for Canada (NMD4C). Launched in January 2020, with funding from MDC and the Canadian Institutes of Health Research …Continue Reading
  • FUNDING FOR INNOVATIVE THERAPIES FOR HEREDITARY ATAXIAS

    FUNDING FOR INNOVATIVE THERAPIES FOR HEREDITARY ATAXIAS

    For immediate release Montréal, April 28, 2023 – It is with great enthusiasm that Génome Québec, Ataxia Canada and Muscular Dystrophy Canada announce the launch of the Innovative Therapies for Hereditary Ataxias competition to encourage the discovery and development of new therapies and to mobilize the research ecosystem. The three organizations aim to jointly invest $1M …Continue Reading
  • MDC funds nine new projects to propel research forward and break down barriers

    MDC funds nine new projects to propel research forward and break down barriers

    Toronto, Ontario – Muscular Dystrophy Canada (MDC) is proud to announce an investment of $832,766 to fund nine new clinical and translational science research projects in 2023 through the MDC neuromuscular disorder (NMD) research grant competition, a dedicated Canadian source of funding for neuromuscular research. “Muscular Dystrophy Canada is a leader in funding ground-breaking research …Continue Reading
  • A Partnership to Fund Research for Hereditary Ataxias

    A Partnership to Fund Research for Hereditary Ataxias

    FOR IMMEDIATE RELEASE Montreal, February 28, 2023 – It is with great pleasure that Génome Québec, Ataxia Canada and Muscular Dystrophy Canada join forces in order to create a funding program for research on hereditary ataxias. The goal of this program is to meet the needs of people affected by these rare neurological diseases, to …Continue Reading
  • MDC, CNDR, NMD4C partner to ensure Canadians can access FSHD cure(s)

    MDC, CNDR, NMD4C partner to ensure Canadians can access FSHD cure(s)

    FOR IMMEDIATE RELEASE February 28, 2023 Toronto, Ontario – Canadians affected by facioscapulohumeral muscular dystrophy (FSHD) could face substantial delays in accessing clinical trials and any Health Canada approved life-changing treatments and therapies when they become available. Muscular Dystrophy Canada (MDC), the Canadian Neuromuscular Disease Registry (CNDR), and the Neuromuscular Disease Network for Canada (NMD4C) …Continue Reading
  • First of its kind: New program will increase patient engagement in neuromuscular disorder research

    First of its kind: New program will increase patient engagement in neuromuscular disorder research

    Toronto, Ontario – Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are proud to announce the launch of imPORTND, an online patient-oriented research (POR) training platform. The imPORTND platform offers online, self-directed, free training modules on how to conduct research that is informed by, and most meaningful to individuals living with …Continue Reading
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