• Muscular Dystrophy Canada calls on provincial governments to prioritize persons affected by neuromuscular disorders for COVID-19 vaccine

    Muscular Dystrophy Canada calls on provincial governments to prioritize persons affected by neuromuscular disorders for COVID-19 vaccine

    February 23, 2021 – Many people living with neuromuscular disorders (NMD) are at greater risk of developing serious symptoms and complications as a result of COVID-19 due to their often pre-existing cardiac and respiratory issues and chronic comorbidities. As the voice of the NMD community in Canada, Muscular Dystrophy Canada (MDC) is calling on governments …Continue Reading
  • Your Impact on the Neuromuscular Community in 2020 was Profound

    Your Impact on the Neuromuscular Community in 2020 was Profound

    Welcome to 2021. I think it’s safe to say we’re all looking forward to the fresh start and renewed possibilities that this year will bring. I want to take this opportunity to thank you for your support of the Canadian neuromuscular community in 2020. It was a challenging year for all, but your support directly …Continue Reading
  • MDC Statement

    MDC Statement

    December 4, 2020 Statement from Stacey Lintern, Chief Executive Officer, Muscular Dystrophy Canada on a Collaboration with Novartis for National Newborn Screening in Spinal Muscular Atrophy (SMA) “The remarkable story of Aiden Deschamps shared this week by Newborn Screening Ontario and the Children’s Hospital of Eastern Ontario demonstrates the profound impact newborn screening has on …Continue Reading
  • Don’t Forget Me This Holiday Season

    Don’t Forget Me This Holiday Season

    The world is a scary and lonely place right now. Due to the global pandemic, we are isolated from our friends and family. Our routines have completely changed. We aren’t able to do the things we love and visit our favourite places. This is what life is like, every day, for many individuals affected by …Continue Reading
  • WMS Challenge

    WMS Challenge

    Many neuromuscular specialists and members of multidisciplinary neuromuscular teams in Canada are part of the World Muscle Society (WMS). WMS provides a multidisciplinary scientific forum to advance and disseminate knowledge in the neuromuscular field for the benefit of patients; stimulates, encourages and helps to develop programs for professionals working in the neuromuscular field; and promotes …Continue Reading
  • Double Your Impact Today

    Double Your Impact Today

    Have you ever heard of Giant Axonal Neuropathy (GAN)? Probably not. It’s a really rare neuromuscular disorder. Hi! My name is Jordan and I’m 9-years old. When I was three and a half, a doctor told me I had GAN. My family had no idea what this meant. But the doctor told us that my …Continue Reading
  • The Tenaquip Foundation Walk for Muscular Dystrophy raising funds, hope and unity in new ways

    The Tenaquip Foundation Walk for Muscular Dystrophy raising funds, hope and unity in new ways

    FOR IMMEDIATE RELEASE July 29, 2020 Toronto, Ontario – Muscular Dystrophy Canada (MDC) is bringing the neuromuscular community together like it never has before. On September 12, 2020 at 2 p.m. EST, thousands of Canadians across the country will come together, virtually, to participate in The Tenaquip Foundation Walk for Muscular Dystrophy (Walk4MD). “This is …Continue Reading
  • Feel Good Friday Client Spotlight: Willms Family

    Feel Good Friday Client Spotlight: Willms Family

    For this week’s #ClientSpotlight, we are excited to feature the Willms family! During COVID-19, parents Josh and Alisha have been keeping busy by creating a more accessible bathroom for their son Emmett to use and grow into. They built a roll-in shower, and an accessible sink to give Emmett more independence and safety in the …Continue Reading
  • Feel Good Friday Client Spotlight: Ken M. Kramer

    Feel Good Friday Client Spotlight: Ken M. Kramer

    For this week’s #ClientSpotlight, we are proud to feature Ken M. Kramer, QC. Ken is the Principal & Senior Associate Counsel for KMK Law, and was also the first person with a neuromuscular disorder to lead Muscular Dystrophy Canada as Chair of the Board of Directors. Ken is an advocate for accessibility and inclusion both …Continue Reading
  • National Volunteer Week 2020

    National Volunteer Week 2020

    Muscular Dystrophy Canada is a volunteer-driven organization. We rely on dedicated, enthusiastic, diverse and dynamic people to help us meet our mission – from clients to family members, community supporters to like-minded organizations, and healthcare professionals to Fire Fighters and beyond. All of our volunteers are key partners in the delivery of MDC’s support programs, …Continue Reading