MYASTHENIA GRAVIS JOURNEY MAPPING: AN INSIDE LOOK
In 2023, Muscular Dystrophy Canada (MDC) conducted a journey mapping initiative for Canadians with myasthenia gravis (MG), a rare autoimmune neuromuscular condition. While some treatments are available for MG in Canada, there remains many challenges and unmet needs. We recognized these recurring roadblocks and difficulties in the diagnosis process for our MG clients, and wanted …Continue ReadingLET’S FIND YOUR PATHWAY OF POSSIBILITIES
Regardless of the NMD, MDC is here to help! The image below illustrates where along your journey MDC's services will be able to support, guide and inform you and your families.Continue ReadingMark got what he needed to get back outside and explore nature!
“My son is a 14 year old boy with DMD who was diagnosed when he was just one and half. Despite the physical limitations, Mark loves nature and outdoor time. But, we have to closely monitor the steps he takes so that he is not overexerting himself which will result in muscle cramps or even …Continue ReadingCommunity Statement: Update on Deflazacort®/Calcort® Availability
We want to bring your attention to recent developments surrounding the availability of Deflazacort®/Calcort®, a corticosteroid vital to many Canadians affected by Duchenne muscular dystrophy. Up until 2023, Deflazacort was accessible at a relatively low cost in Canada through Health Canada’s Special Access Program despite intermittent supply shortages. In February, due to a change in …Continue ReadingYour support has improved outcomes for thousands of Canadians, like Ben
“We thought our child was going to die a very slow and painful death. Our world ended, and we were never going back to life as we knew it.” Those were Amanda and Brodie’s first thoughts when they learned their son, Ben, was affected by Duchenne muscular dystrophy (DMD). For the first three years of …Continue ReadingQuebec joins the ranks of provinces screening newborns for life-threatening disorder
FOR IMMEDIATE RELEASE – Muscular Dystrophy Canada (MDC) is thrilled to announce that spinal muscular atrophy (SMA) has been added to the newborn screening panel in Quebec. A significant milestone for the province and MDC. “Congratulations to the Government of Quebec on this step, which will lead to early diagnosis and treatments that will have …Continue ReadingFreya’s life has been changed, thanks to your amazing support
For many, the birth of a child is an exciting, and joyful event. Freya’s birth was no exception. Born last year, Freya was small, beautiful, and one of the first babies to be screened for spinal muscular atrophy (SMA) in Alberta. In 2020, MDC began work to positively influence policy change, and get SMA included …Continue ReadingAbilities (at the) Centre of new location for Walk and Roll for Muscular Dystrophy Canada
FOR IMMEDIATE RELEASE June 16, 2023 Toronto, Ontario – The 2023 Walk and Roll for Muscular Dystrophy Canada (MDC) has changed venues from a local park to the Abilities Centre in Whitby in an effort to ensure the event is as accessible as possible for all participants. It takes place on June 25, 2023. “MDC …Continue ReadingBREAKING DOWN BARRIERS FOR THE NEUROMUSCULAR COMMUNITY
Muscular Dystrophy Canada’s (MDC) strategic priorities represent a continuing evolution for our organization. They build upon the outcomes and learnings over the last three years, during which time our organization continued to meet the needs of clients through our programs and services, equipment, and system navigation; successfully encouraged governments to change public policy; and, supported …Continue ReadingVALUE OF A MONTHLY GIFT
VALUE OF A MONTHLY GIFT Did you know that every month, you have the opportunity to change the life of someone affected by a neuromuscular disorder? Making a monthly donation, and becoming an MDC Changemaker is an important and rewarding way to show your support for the neuromuscular disorder community. By pledging a few dollars …Continue Reading