• WMS Challenge

    WMS Challenge

    Many neuromuscular specialists and members of multidisciplinary neuromuscular teams in Canada are part of the World Muscle Society (WMS). WMS provides a multidisciplinary scientific forum to advance and disseminate knowledge in the neuromuscular field for the benefit of patients; stimulates, encourages and helps to develop programs for professionals working in the neuromuscular field; and promotes …Continue Reading
  • Double Your Impact Today

    Double Your Impact Today

    Have you ever heard of Giant Axonal Neuropathy (GAN)? Probably not. It’s a really rare neuromuscular disorder. Hi! My name is Jordan and I’m 9-years old. When I was three and a half, a doctor told me I had GAN. My family had no idea what this meant. But the doctor told us that my …Continue Reading
  • The Tenaquip Foundation Walk for Muscular Dystrophy raising funds, hope and unity in new ways

    The Tenaquip Foundation Walk for Muscular Dystrophy raising funds, hope and unity in new ways

    FOR IMMEDIATE RELEASE July 29, 2020 Toronto, Ontario – Muscular Dystrophy Canada (MDC) is bringing the neuromuscular community together like it never has before. On September 12, 2020 at 2 p.m. EST, thousands of Canadians across the country will come together, virtually, to participate in The Tenaquip Foundation Walk for Muscular Dystrophy (Walk4MD). “This is …Continue Reading
  • Feel Good Friday Client Spotlight: Willms Family

    Feel Good Friday Client Spotlight: Willms Family

    For this week’s #ClientSpotlight, we are excited to feature the Willms family! During COVID-19, parents Josh and Alisha have been keeping busy by creating a more accessible bathroom for their son Emmett to use and grow into. They built a roll-in shower, and an accessible sink to give Emmett more independence and safety in the …Continue Reading
  • Feel Good Friday Client Spotlight: Ken M. Kramer

    Feel Good Friday Client Spotlight: Ken M. Kramer

    For this week’s #ClientSpotlight, we are proud to feature Ken M. Kramer, QC. Ken is the Principal & Senior Associate Counsel for KMK Law, and was also the first person with a neuromuscular disorder to lead Muscular Dystrophy Canada as Chair of the Board of Directors. Ken is an advocate for accessibility and inclusion both …Continue Reading
  • National Volunteer Week 2020

    National Volunteer Week 2020

    Muscular Dystrophy Canada is a volunteer-driven organization. We rely on dedicated, enthusiastic, diverse and dynamic people to help us meet our mission – from clients to family members, community supporters to like-minded organizations, and healthcare professionals to Fire Fighters and beyond. All of our volunteers are key partners in the delivery of MDC’s support programs, …Continue Reading
  • COVID – 19: What you should know about this novel coronavirus

    COVID – 19: What you should know about this novel coronavirus

    Given the recent updates on COVID-19, Muscular Dystrophy Canada has implemented a work from home policy, therefore, effective immediately all MDC offices are closed. Our staff remain available via email and telephone and will continue to serve our clients, volunteers, donors and other key stakeholders. During this difficult time, we remind everyone that social distancing …Continue Reading
  • Response to PMPRB Draft Guidelines Consultation

    Response to PMPRB Draft Guidelines Consultation

    February 14, 2020 Dr. Mitchell Levine Chairperson Patented Medicines Prices Review Board 333 Laurier Avenue West, Suite 1400 Ottawa, Ontario K1P 1C1 Email: PMPRB.Consultations.CEPMB@pmprb-cepmb.gc.ca Dear Dr. Levine: Muscular Dystrophy Canada is thankful for the invitation to attend the PMPRB Consultation meeting in Ottawa on December 10, 2019 and for the opportunity to respond to the …Continue Reading
  • Key topics in Spinal Muscular Atrophy research discussed at first ever Muscular Dystrophy Canada SMA Research Summit

    Key topics in Spinal Muscular Atrophy research discussed at first ever Muscular Dystrophy Canada SMA Research Summit

    Toronto, November 15, 2019 – Research experts, the medical community, and industry stakeholders came together in Toronto this week at the inaugural Muscular Dystrophy Canada (MDC) SMA Research Summit to discuss new research and development. “This summit was an important opportunity for us to review the latest developments and discuss where there are opportunities to …Continue Reading
  • Major Improvement in CRISPR Technology Could Fix Genetic Spelling Mistakes: Implications for Neuromuscular Disorders?

    Major Improvement in CRISPR Technology Could Fix Genetic Spelling Mistakes: Implications for Neuromuscular Disorders?

    CRISPR-Cas9 technology, a gene editing tool, has been significantly upgraded with a new feature called prime editing. This enhancement addresses two limitations of CRISPR technology by: (1) allowing the change of a gene’s spelling into a predicted sequence without requiring a cell to divide and (2) without needing to cut both strands of the DNA …Continue Reading