As the voice of the neuromuscular community, we continue to advocate to government and decision makers for policy changes that will better the lives of our clients. We focus our advocacy efforts at a national, provincial and individual level.
We are focused on ensuring Canadians have access to clinical trials, new treatments and affordable medication at both the federal and provincial levels. We work with industry, government agencies and like-minded organizations to ensure the patient voice is at the centre of the decision-making process.
Our staff also works with clients and their family members to provide guidance and resources to ensure they feel confident and secure in advocating for themselves or their loved ones.