Julie’s family knows firsthand how myotonic dystrophy (DM1) can change lives.
Her husband Michel was the first to be diagnosed. Within a year, two of their three children, Alexandra and Nicholas, received the same diagnosis.
For Michel, strength meant taking his neurologist’s advice: “Stay strong, stay active”, and running a full marathon under medical supervision.
For Alexandra, strength meant turning fears of isolation — “I just want to meet someone like me” — into action.
Today, she volunteers with Muscular Dystrophy Canada, helping others find the same community that lifted her up.
For Julie, strength has meant carrying her family through uncertainty while building a community of hope for others. “As long as I have the strength to fight, I will fight. Not only for my family, but for every family living with myotonic dystrophy,” she says.
But here’s the truth: not every family is as fortunate as Julie’s to receive answers quickly. Across Canada, too many families wait months, even years for genetic testing and the clarity it brings.
That’s why your support is so critical. Your generosity will be doubled. Every donation made by December 31, 2025, will be matched by the D&B Charitable Gift Fund, turning your gift into twice the impact*.
Your gift today will:
- Expand access to genetic testing so families get answers faster.
- Provide vital support services and community connections.
- Fund research that is bringing us closer to life-changing treatments and cures.
This holiday season, please give generously. Families like Julie’s are counting on you.
*All donations made before December 31, 2025, 11:59pm will be matched by D&B Charitable Gift Fund, up to $50,000 dollar for dollar.
