We’re working to close the treatment gap and open options for life-changing treatments and better quality of life.
Our goal is to ensure that Canadians receive the same life-changing treatment as their peers around the world – without delay, and without financial burden.
Potential treatments currently in development are transforming the outlook for many neuromuscular disorders. But these treatments will be of little help if the people who need them can’t access them.
Our goal is to support timely and fair access to neuromuscular treatments across Canada. This means that treatments should be available to people in Canada at the same time as they are in other countries, and at a price that is affordable for affected families – ideally covered by provincial and other public drug programs.
In Canada, any new treatment must be approved by Health Canada before it becomes broadly available. Provinces and other public drug plans then decide whether to cover the costs. These are lengthy processes, and there are other steps along the way, too.
Our team at Muscular Dystrophy Canada understands these lengthy processes and engages regularly with Health Canada, provincial and public drug programs, and other agencies to help them understand the needs of the neuromuscular community.
As new treatments are reviewed, we provide scientific evidence and data to show why people in the neuromuscular community should have swift and affordable access.
Do you have a question about accessing a neuromuscular treatment? We can help! Reach out to our research hotline to learn about treatment status or ask any questions about treatment access