Explore our advocacy work and discover how we’re building a future where everyone in Canada’s neuromuscular community can thrive.
We’re committed to transforming the lives of Canadians living with neuromuscular disorders by breaking down barriers that stand in the way of better outcomes.
Through bold action that is informed by evidence and engagement with people who have lived experience, we’re driving real change in three critical areas.
For too many Canadians with neuromuscular disorders, the journey to diagnosis is long and uncertain. Our focus on early diagnosis aims to change that, opening the door to treatment, clinical trials and better care.
Innovative treatments are revolutionizing the outlook for neuromuscular disorders. But they are meaningless if the people who need them can’t access them.
Our advocacy is shaped by the real-life experiences of Canada’s neuromuscular community. Help us identify key barriers and shape meaningful solutions.
Our advocacy is shaped by the real-life experiences of Canada’s neuromuscular community. Help us identify key barriers and shape meaningful solutions.